How are DC teens with special health care needs and their families faring when it comes to transition from pediatric to adult health care?
Only 34% of DC adolescents with special health care needs are
receiving the support they need to transition to adult health care, work
and independence, according to the National Survey of Children with
Special Health Care Needs.
Adolescents least likely to receive needed transition support are Black,
in families with incomes below 200 percent of the federal poverty level,
publicly insured, and without a medical home.
What are teens' and parents' perspectives on health care transition?
Health care transition is a new topic for the teens and parents
interviewed in our recent focus group study. Although most appeared
to be informed about education transition, few teens and parents
reported that they talked to the teen's doctor or nurse about
transitioning to an adult doctor.
Both teens and parents indicated an interest in receiving more
information from their child's doctor about adult doctors and health
insurance. They preferred face-to-face discussions, but also internet-
based information, text messages, and interactive approaches for teens
and group meetings or transition kits for parents.